Protocollen van de Thalassaemia International Federation
Guidelines for the Clinical Management of Thalassaemia
Compliance to Iron Chelation Therapy with Desferrioxamine
What is thalassaemia?
Preface
Chapters 1 & 2
The Thalassaemias: Overview
Genetic Basis and Pathophysiology
Chapters 3 & 4
Blood Transfusion Therapy in β-Thalassaemia Major
Splenectomy in Thalassaemia Major
Chapter 5 Iron Overload
Chapters 6 & 7
The Management of the Cardiac Complications of Thalassaemia Major Endocrine Complications In Thalassaemia Major
Chapter 8
Infections in Thalassaemia Major
Chapter 9
Bone Marrow Transplantation
Chapter 10
Psychological Support of Thalassaemia
Chapter 11
Thalassaemia Intermedia
Chapter 12
β-Thalassaemia/Hb E
Chapter 13
Alternative Approaches for Thalassaemia Treatment
Chapter 14
General Health Care and Lifestyle in Thalassaemia
Appendices
References
Preface - Introduction
Clinical Management of Thalassaemia
The Importance of Iron Chelation Therapy
What is Compliance?
Barriers and Aids to Compliance / Adherence
The Importance of a Dedicated Thalassaemia Centre
References
Section 1: Introduction to Thalassaemia
Chapter 1 What Is Thalassaemia? How Is It Inherited
Section ll: Thalassaemia Major
Chapter 2 What happens in thalassaemia major?
Chapter 3 So you want to know more?
Chapter 4 Questions about blood transfusion
Chapter 5 Why high transfusion is better than low transfusion
Chapter 6 Problems with blood transfusion
Chapter 7 Questions about the spleen and splenectomy
Chapter 8 Questions about bone-marrow transplantation
Chapter 9 Questions about iron overload and Desferal
Chapter 10 Desferal and the pump
Chapter 11 Other problems in thalassaemia
Chapter 12 Questions about puberty
Chapter 13 Questions about AIDS
Chapter 14 Questions about the future
Section Ill: Other Types of Beta-Thalassaemia
Chapter 15 Thalassaemia intermedia
Chapter 16 Particular problems in thalassaemia intermedia
Chapter 17 Thalassaemia associated with an "abnormal haemoglobin"
Section IV. Psychological Aspects of Thalassaemia
© 2002 Thalassaemia International Federation
