- OSCAR (sikkelcel.nl) – Web-site Patient organization OSCAR Nederland
- Sickle Cell Society
- Thalassaemia International Federation (internationally recognized protocols for treatment)
- Thalassemie.nl – Site by Elmas Citak, Bèta Thalassemie Major patient herself; the site contains information about her personal experience as a thalassemia major patient
- Bloedziekten.nl – General information about blood diseases
- Cooley’s Anemia Foundation, Inc. – Site in English for patients and their families, medical staff and others about thalassemia.
- www.huisartsengenetica.nl
- Treatment of Hemoglobinopathies
- Protocols of the Thalassaemia International Federation